PhD, University of Cincinnati, 2001, Nursing : Doctoral Program in Nursing
With increasing sophistication and portability of medical equipment and health care advances, infants and children who require technology to survive are cared for at home. Yet little is known about the population of technology dependent infants and their families. Therefore, the purpose of this study was to examine the experience of receiving and caring for a technology dependent in the home. van Manen's phenomenological method was selected for inquiry. Data were collected from interviews with eight mothers, as well as researcher personal experience, etymological sources, idiomatic phrases, and descriptions in literature. The seven common essential themes extracted from the data were receiving and caring for a technology dependent infant in the home is: (1) moving from learning care to making judgments regarding infant's health; (2) getting to know the infant's likes, dislikes, and health related behaviors; (3) recognizing changes in family dynamics and meeting family needs through adjustments in roles, responsibilities, and lifestyles; (4) learning to manage the increased work and time infant care requires; (5) navigating an ever changing array of emotions and concerns; (6) ascribing improvements in infant and family situation to being home; and (7) recognizing differences but seeing similarities when comparing infant to others. When the concepts of the Kenner Transition Model were linked with the essential themes, three overall themes that describe the essence of the phenomenon were extracted: (1) Moving from learning about infant to making judgments regarding infant's health; (2) Recognizing the need for adjustment in roles, responsibilities, and priorities; and (3) Navigating constantly changing emotions to achieve near normalcy. Practice implications include better preparation of the families for home life before discharge. An increase in responsibility for infant care and equipment negotiations before discharge can ease a family into these roles. Encouraging f (open full item for complete abstract)
Committee: Dr. Margaret Miller (Advisor)
Subjects: Health Sciences, Nursing