Doctor of Philosophy, The Ohio State University, 2022, Psychology
The population of the United States is rapidly aging, and the number of Americans shouldering the burdens of providing informal care to aging family members is climbing steadily (National Academy of Sciences, Engineering, and Medicine, 2016). In response to mounting evidence that family caregivers of individuals with dementia face unique challenges, researchers have tested dozens of interventions designed to meet the specific needs of this population (Maslow, 2012). Although evidence-based dementia caregiver interventions generally produce significant benefits to participants (Brodaty et al., 2003; Laver et al., 2017; Vandepitte et al., 2016), very few caregivers have opportunities to access them. One significant barrier to the dissemination of evidence-based services to caregivers in the community is a lack of clarity about how best to assess individual needs and circumstances relevant to selecting evidence-based interventions (Bangerter et al., 2017; Mansfield et al., 2017). With this project, we used a two-phase mixed-methodological research design to develop and validate a self-reported assessment of dementia caregivers' unmet needs for use in clinical settings. Common factor analysis revealed a bifactor structure with a general factor and five specific factors (i.e., Leisure Difficulties, Grief Difficulties, Caregiving Difficulties, Emotional Difficulties, Physical Health Difficulties) that best fit the data. Scores on these subscales were internally consistent and were related to scores on existing validated instruments of caregiver burden, social functioning, impacts of caregiving, psychological well-being, and physical health. Strengths of this project include our focus on utilizing gold-standard scale development procedures throughout the multi-phase design. Future researchers should investigate the effectiveness of using this measure to match caregivers to current evidence-based interventions.
Committee: Jennifer Cheavens (Advisor); Holly Dabelko-Shoeny (Committee Member); Paulus De Boeck (Committee Member); Daniel Strunk (Committee Member)
Subjects: Gerontology; Psychological Tests; Psychology