PHD, Kent State University, 2016, College of Arts and Sciences / Department of Psychological Sciences
Sickle Cell Disease (SCD) is a genetic, lifelong condition and the symptoms of SCD include pain crises, acute chest syndrome, increased risk of infection, decreased red blood cells, and stroke. Due to the chronic and difficult to manage nature of SCD, non-adherence is a problem and results in greater rates of hospitalization, infection, pain crises, acute chest syndrome, and an increased risk for early death. Disease management in adolescents with chronic illnesses is more complex than for young children or adults. As they are developing, adolescents become more independent, and responsibility for adherence tasks begins to fall more to the adolescent than their parent. Previous research has revealed that many factors contribute to adherence in SCD, and the best model for studying adherence in this population can be informed by models of adherence in diabetes and the Health Belief Model.
Research supports the importance of including adolescent psychosocial functioning, parental stress, and parental perceived barriers when examining contributions to adherence in adolescence. The goal of the proposed study is to evaluate the contributions of adolescent psychosocial functioning, parental stress, and parental perceived barriers to adherence in adolescents with SCD. Overall, findings did not support hypotheses, but important relationships were revealed for this understudied population. The main findings from this study relate to adherence in youth with SCD and fall into three main areas: adolescent anxiety, responsibility for adherence, and healthcare barriers. Adolescents high in anxiety self-reported higher mean levels of adherence than non-anxious adolescents, indicating anxiety may be a protective factor for adherence. In this sample, parents took the majority of responsibility for a range of adherence tasks; however, there were some important tasks for which no one took clear responsibility. Responsibility also varied by mother level of education and insurance ty (open full item for complete abstract)
Committee: Beth Wildman Ph.D. (Advisor); Josefina Grau Ph.D. (Committee Member); John Updegraff Ph.D. (Committee Member); Prasad Bodas M.D. (Committee Member); Mark A. James Ph.D. (Committee Member)
Subjects: Clinical Psychology