Doctor of Philosophy, The Ohio State University, 2022, Psychology
In recent decades, the field of autism has embraced family-centered care (FCC) as one tool for decreasing parental stress, with several studies demonstrating the positive impact of FCC on families (Dunst et al., 2007). However, parents of children with autism spectrum disorder (ASD) are less likely to report receiving FCC than parents of children with other health care needs (Brachlow et al., 2007; Gabovitch & Curtin, 2009). Applied Behavior Analysis (ABA) is a highly utilized category of treatment for ASD (Hyman et al., 2020), allowing providers of ABA the opportunity to have a particularly significant impact on families. No known studies have examined the state of FCC in ABA in the United States, and FCC is not a required component of training for Board Certified Behavior Analysts (BCBAs) (Behavior Analyst Certification Board, 2020). The aims of this study were: 1) Explore the current implementation of FCC in ABA and 2) Develop, implement, and evaluate a series of trainings for BCBAs focused on family-centered topics.
In Phase One of this study, 16 parents of children aged 2-18 receiving ABA intervention for ASD and 10 BCBAs providing ABA intervention to children with ASD participated in focus groups. Transcripts were analyzed using grounded theory to identify the extent to which parents receive and BCBAs practice the four core components of FCC (respect and dignity, information sharing, participation, and collaboration). Several identified themes were common to both groups, with some themes unique to either the parent or BCBA groups. Overall, areas of strength and weakness related to the provision of FCC were shared by parents and BCBAs. Parents and BCBAs identified several barriers that prevent the provision of high-quality FCC, and BCBAs identified areas in which they would like to receive additional training.
In Phase Two of this study, a series of 8 training sessions utilizing the Extension of Community Healthcare Outcomes (ECHO™) model were provided (open full item for complete abstract)
Committee: Andrea Witwer (Advisor); Vanessa Rodriguez (Committee Member); Susan Havercamp (Committee Member); Katherine Walton (Committee Chair)
Subjects: Psychology