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Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV

Perazzo, Joseph D
http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304

Abstract Details

2015, PhD, University of Cincinnati, Nursing: Nursing - Doctoral Program.
Background: Despite tremendous advances in HIV treatment, less than 30% of the more than 1 million people living with HIV in the US are achieving optimal treatment outcomes. Researchers have recognized that there is an urgent need to understand factors and processes that influence individuals with HIV to initiate HIV care. Purpose: The specific aims of the study were to develop a theoretical framework to explain the psychosocial process of care initiation in individuals living with HIV to identify the critical junctures, defined as pivotal events reported by study participants, that influence individuals living with HIV in their decision to initiate HIV care Methods: Grounded theory was the method used to analyze in-depth interviews with individuals living with HIV. A team of IRB-approved researchers analyzed the data using three levels of coding: Open coding, selective coding, and theoretical coding. Analysis was conducted with an aim of identifying the psychosocial process of care initiation by individuals living with HIV. Results: 30 individuals living with HIV (28 men, 2 women) participated in the study. Participants shared their stories about how they went from learning that they had HIV to the point of HIV care initiation. The core category discovered in the data was concept of HIV as news. News, by definition, is impactful information that was not previously known that is delivered by one party and received by another. Participants described a process in which they progressed through five distinct stages: a) receiving the news, b) interpreting the news, c) incorporating the news, d) acting on the news, and e) moving beyond the news. Each stage was moderated by influential factors including perceived susceptibility to HIV infection, symptoms, HIV information, and feedback from others. The initial receipt of the news was typically interpreted as `bad news’. However, through reflection, interaction with others, and information seeking, participants learned that HIV was not a death sentence and that there are treatment options available to them. In effect, the participants were able to translate the news, often beginning as something bad, but changing into something good. The constructed framework is known as “Translating the News: A Grounded Theory of HIV Care Initiation” Conclusion: Individuals who are diagnosed with HIV often encounter a myriad of challenges at the point of diagnosis. Individuals are able to move through the care initiation process with fewer complications when they are provided with encouragement and information, particularly about their treatment options. The key to successful care initiation is helping individuals with HIV to realize that while the diagnosis may seem like bad news, there is also good news: HIV is not a death sentence.
Donna Martsolf, Ph.D. R.N. (Committee Chair)
Judith Feinberg, M.D. Ph.D. (Committee Member)
Donna Shambley-Ebron, Ph.D. (Committee Member)
226 p.
Nursing
HIV; Care Initiation; Grounded Theory; HIV Care Factors; HIV Care; HIV Care Theory

Recommended Citations

Citations

  • Perazzo, J. D. (2015). Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV [Doctoral dissertation, University of Cincinnati]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304

    APA Style (7th edition)

  • Perazzo, Joseph. Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV. 2015. University of Cincinnati, Doctoral dissertation. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304.

    MLA Style (8th edition)

  • Perazzo, Joseph. "Translating the News: A Grounded Theory of Care Initiation by Individuals Living with HIV." Doctoral dissertation, University of Cincinnati, 2015. http://rave.ohiolink.edu/etdc/view?acc_num=ucin1427981304

    Chicago Manual of Style (17th edition)

ucin1427981304
680
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This open access ETD is published by University of Cincinnati and OhioLINK.