Skip to Main Content
 

Global Search Box

 
 
 
 

Files

File List


J.Strickler Thesis Document.pdf (1.2 MB)

ETD Abstract Container

Abstract Header

Evaluating an Informed Consent Process Designed to Improve Inclusion of Adults with Intellectual Disability in Research

Strickler, Jesse Gabriel
http://rave.ohiolink.edu/etdc/view?acc_num=osu1618402501173907

Abstract Details

2021, Master of Science, Ohio State University, Psychology.
Adults with intellectual disability (ID) are both underrepresented in research and enrolled in studies that they may not understand. Instead of facilitating research engagement, the informed consent process often fails to elucidate the very elements that are essential to informed consent. The primary goal of this pilot research was to evaluate whether a novel informed consent process was more effective than current practice at including adults with ID in research. N=21 adults with ID completed a novel iterative teaching process (ITP) for teaching and assessing informed consent. The ITP consisted of three distinct approaches (i.e., Conventional consent form, Easy Read, and Conversational) to teaching comprehension of each of the nine core domains deemed essential to informed consent. Following each teaching mode, participants were asked a series of open-ended questions to assess their attitudes toward, and their comprehension of, the ITP materials. The pilot found encouraging evidence for the efficacy and feasibility of the ITP. The ITP approach improved comprehension of the essential elements of consent. Results did not support a clear advantage of one mode of presentation over another; both the Easy Read and Conversational modes were effective in teaching the materials as well as being well liked by participants. Measures of verbal intelligence were the strongest predictors of capacity to consent in this sample. The design and findings of this project contribute to a growing literature by introducing a process for teaching and evaluating informed consent.
Susan Havercamp, Ph.D. (Advisor)
Marc Tassé, Ph.D. (Committee Member)
Kathryn Vannatta, Ph.D. (Committee Member)
Psychology
intellectual disability; ID; informed consent

Recommended Citations

Citations

  • Strickler, J. G. (2021). Evaluating an Informed Consent Process Designed to Improve Inclusion of Adults with Intellectual Disability in Research [Master's thesis, Ohio State University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=osu1618402501173907

    APA Style (7th edition)

  • Strickler, Jesse. Evaluating an Informed Consent Process Designed to Improve Inclusion of Adults with Intellectual Disability in Research. 2021. Ohio State University, Master's thesis. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=osu1618402501173907.

    MLA Style (8th edition)

  • Strickler, Jesse. "Evaluating an Informed Consent Process Designed to Improve Inclusion of Adults with Intellectual Disability in Research." Master's thesis, Ohio State University, 2021. http://rave.ohiolink.edu/etdc/view?acc_num=osu1618402501173907

    Chicago Manual of Style (17th edition)

osu1618402501173907
315
© 2021, all rights reserved.
This open access ETD is published by The Ohio State University and OhioLINK.