Skip to Main Content
 

Global Search Box

 
 
 
 

ETD Abstract Container

Abstract Header

DISCOVERING THEMES: DISABILITY IDENTITY DEVELOPMENT AS IT PERTAINS TO PEOPLE BORN WITH SPINA BIFIDA

Abstract Details

2019, Psy. D., Antioch University, Antioch Seattle: Clinical Psychology.
To date, disability identity development is a highly understudied construct. There are many models of disability, each interpret disability through a specific lens, but do not address the influence of disability on identity development. The few theories of disability identity that do exist have not been widely adopted. In addition, there is a lack of empirical evidence to support them. Another difficulty is that these theories do not separate different disability groups. Rather, the theories are applied to a broad heterogenous group of disability types. This is a problem because each disability type is quite distinct from the others and therefore each disability requires its own developmental model. On the surface, alternate models of identity development, such as racial identity development, seem similar to what might be expected in the process of disability development, however, as of 2019, no such studies have been conducted or published. It is the purpose of this project to uncover themes of disability identity development as they pertain to people with spina bifida in order to build a framework for understanding the process of identity development in this population. A descriptive phenomenological methodology was used to conduct a thematic analysis of existing literature. A total of 79 articles were reviewed in detail, and common themes and connections were noted. Nine themes of identity development for people with spina bifida emerged. The themes include: (a) employment, (b) family, (c) physical health, (d) psychological and mental health (e) view of disability, (f) sexuality, (g) impact of others, (h) psychosocial, and (i) transition. Each theme was deemed an essential element in understanding the process of identity development for those with spina bifida. This study was limited by the scope of literature reviewed as well as a lack of first-hand accounts of the identity process. This work is intended to be preliminary and to provide direction for further research. This dissertation is available on open access at Aura, http://aura.antioch.edu/ and Ohio Link Etd. Center, https://etd.ohiolink.edu/etd.
Dana Waters, Ph.D. (Committee Chair)
Elizabeth Boland, Ph.D. (Committee Member)
Brett Kuwada, Psy.D. (Committee Member)
145 p.

Recommended Citations

Citations

  • Scriven, E. H. (2019). DISCOVERING THEMES: DISABILITY IDENTITY DEVELOPMENT AS IT PERTAINS TO PEOPLE BORN WITH SPINA BIFIDA [Doctoral dissertation, Antioch University]. OhioLINK Electronic Theses and Dissertations Center. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1559730463371335

    APA Style (7th edition)

  • Scriven, Elizabeth. DISCOVERING THEMES: DISABILITY IDENTITY DEVELOPMENT AS IT PERTAINS TO PEOPLE BORN WITH SPINA BIFIDA. 2019. Antioch University, Doctoral dissertation. OhioLINK Electronic Theses and Dissertations Center, http://rave.ohiolink.edu/etdc/view?acc_num=antioch1559730463371335.

    MLA Style (8th edition)

  • Scriven, Elizabeth. "DISCOVERING THEMES: DISABILITY IDENTITY DEVELOPMENT AS IT PERTAINS TO PEOPLE BORN WITH SPINA BIFIDA." Doctoral dissertation, Antioch University, 2019. http://rave.ohiolink.edu/etdc/view?acc_num=antioch1559730463371335

    Chicago Manual of Style (17th edition)